Resources

National Association for Continence - National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders.

Simon Foundation The foundation is a 501(c)(3) organization. The mission of the Simon Foundation is to bring the topic of incontinence out into the open, remove the stigma surrounding incontinence, and provide help and hope to people with incontinence, their families and the health professionals who provide their care.

Interstitial Cystitis AssociationThe Interstitial Cystitis Association (ICA) is the only nonprofit association dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC).

National Vulvodynia Association -  Whether you are a woman with vulvodynia (or think that you may have the condition), a family member or friend of an affected woman or a health care provider who treats the disorder, NVA has developed numerous resources to help you learn about the disorder and obtain the help you need.

National Institute of Diabetes and Digestive Kidney Disease - The mission of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is to conduct and support medical research and research training and to disseminate science-based information on diabetes and other endocrine and metabolic diseases; digestive diseases, nutritional disorders, and obesity; and kidney, urologic, and hematologic diseases, to improve people’s health and quality of life. 

International Pelvic Pain Society - The goals of the IPPS are:

  • To serve as an educational resource for health care professionals.
  • To optimize diagnosis and treatment of patients suffering from chronic pelvic pain.
  • To collate research in chronic pelvic pain.
  • To inform men and women, to serve as a resource of education for treatment options and professional health care Members.

 

Agency for Healthcare Research and Quality (AHRQ) - The AHRQ is part of the Department of Health & Human Services. The "For Patients and Consumers" page has links to information on Care Planning, Diagnosis and Treatment, Patient Involvement and Prevention & Health. The "Health Care Information" page has information on hundreds of conditions from A to Z. 

International Foundation for Functional Gastrointestinal Disorders - IFFGD is a Public Charity designated under the U.S. IRS code 501(c)(3). We are a registered nonprofit education and research organization. Our mission is to inform, assist and support people affected by gastrointestinal (GI) disorders. Founded in 1991 byancy Nortonnd William Norton, IFFGD has been working with patients (both adults and children), families, physicians, practitioners, investigators, employers, regulators, and others to broaden understanding about gastrointestinal disorders and support or encourage research.

International Continence Society The ICS is a registered charity with a global health focus which strives to improve the quality of life for people affected by urinary, bowel and pelvic floor disorders by advancing basic and clinical science through education, research, and advocacy.

International Children’s Continence Society - The fundamental goal of the ICCS is to improve the quality of life and the life expectancy for all growing individuals with deficient bladder function, expressed as problems of storage and evacuation of urine.  

US TOO -  Us TOO International Prostate Cancer Education & Support Network is a grassroots, registered 501(c)(3) non-profit prostate cancer education and support network of 325 support group chapters worldwide, providing men and their families with free information, materials and peer-to-peer support so they can make informed choices on detection, treatment options and coping with ongoing survivorship. The organization was founded in 1990 by five men who had been treated for prostate cancer.

 

American Foundation of Urologic Disease
1128 North Charles St.
Baltimore, MD 21201   Phone: (800) 242-2383